New AHHE Narrative Medicine article:’Honouring a life and narrative work: John’s story’ by Sara Ryan

©Royal College of General Practitioners

Honouring a life

AHHE-17-1 Special Medical Humanities Issue: Representing Trauma; Honouring Broken Narratives

& narrative

work:

John’s story

by Sara Ryan

 

 

The importance of witnessing broken narratives and somehow writing or representing these is matched by the challenges associated with trying to do this within a context of normativity and expected academic practice. We have to be convincing in our work, both in terms of rigour and dependability but also in terms of the way we make sense of the stories we are told. In this essay, I examine the narrative of John, a 63-year-old British man diagnosed with autism. I explore how, by interrupting John’s narrative in search of the story I wanted and anticipated, I was disrupting his attempts to understand, form and reform his experiences within the interview setting. I argue we have a commitment to ignore the ‘rules’ of interviews and narrative in order to open up space for people to explore and make sense of their experiences beyond the tyranny of our research questions. http://journals.sagepub.com/doi/full/10.1177/1474022217729178

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New AHHE Medical Humanities SI Editorial article ‘Broken narratives and the lived body’

Emma Barnard

 Editorial article by Renata KokanovićMeredith Stone,

The ‘Broken Narrative’ essays included in this issue open up a critical space for understanding and theorising illness narratives that defy a conventional cognitive ordering of the self as a bounded spatial and temporal entity. We discuss how narratives might be ‘broken’ by discourse, trauma, ‘ill’ lived bodies and experiences that exceed linguistic representation. We trouble distinctions between coherent and incoherent narratives, attending to what gaps, silences and ‘nonsenses’ can convey about embodied illness experiences. Ultimately, we suggest that ‘breaks’ are in fact a continuation of embodied narration. This is shown in the ‘Art and Trauma’ forum of essays, which reveal how narrative silences can ‘infect’ other embodied subjects and be transformed, achieving musical or visual representation that allow us to apprehend the ‘constitutive outside’ of narratives of illness or trauma. (more…)

New #BrokenNarratives article:Weathering a violent storm together with those experiencing psychosis-related challenges

©Emma Barnard @PatientAsPaper

Vol. 17, Issue 1 2017
http://journals.sagepub.com/toc/ahha/17/1

Weathering a violent storm together – Witnessing and co-constructing meaning in collaborative engagement with those experiencing psychosis-related challenges

by Lizette Nolte in

Special Medical Humanities Issue: Representing Trauma; Honouring Broken Narratives

Guest Editor : Deborah Bowman Guest Editor : Renata Kokanović Guest Editor : Jan Parker

Article

The experience of psychosis can sweep into a life like a violent storm. In this paper, I first attempt to fully imagine the experience of such a storm by drawing on first person accounts and then consider the clinical encounter between mental health practitioners and those who find themselves amidst this storm. I reflect on ways we can better support meaning-making of, and purposefully living with, these potentially intensely distressing and disturbing experiences. Drawing on narrative and collaborative practices, I consider grounding the embodied experiences related to psychosis, honouring the stories of severe and enduring mental health problems and the life experiences that lead to them, accompanying people in their meaning-making of these experiences and joining in the fight against stigma. In particular, the importance of walking alongside those in the throes of the storm and bearing witness to their suffering is highlighted. Finally, the implications for the training of mental health professionals are considered. http://journals.sagepub.com/doi/full/10.1177/1474022217732869

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Bodywork: Self-harm, trauma, and embodied expressions of pain; in NEW AHHE SPECIAL ISSUE: REPRESENTING TRAUMA; HONOURING BROKEN NARRATIVES

NEW AHHE SPECIAL ISSUE: REPRESENTING TRAUMA; HONOURING BROKEN NARRATIVES          http://journals.sagepub.com/toc/ahha/17/1

Bodywork: Self-harm, trauma, and embodied expressions of pain
Kesherie Gurung

Self-harm, or self-mutilation, is generally viewed in academic literature as a pathological act, usually born out of trauma and/or a psychological and personality defect. Individuals who engage in self-harm are usually seen as damaged, destructive, and pathological. While self-harm is not a desirable act, this paper argues through the narratives of those who engage in such acts that self-harm may be better construed as a meaningful, embodied emotional practice, bound up in social (mis)understandings of psychological pain and how best to attend to such pain. In particular, this paper suggests that those who engage in self-harm practices are performing embodied, socially situated acts of healing, survival, and self-creation in a physical attempt to retell complex, fragmented stories of abuse, existential angst, trauma, and loss of self. While these individuals may be more or less successful in such attempts, this paper suggests that understandings of self-harm would benefit from more nuanced approaches to individuals’ embodied expressions of pain that take into account the difficult nature of psychological suffering and the effects of trauma.

CfP Performance, Trauma and Victimhood 31st Jan for 26th April, London

This interdisciplinary conference explores the role of performance and performativity in the mediation of traumatic effects. With a view to interrogating traditional conceptions of traumatic unrepresentability, it invites papers that explore the potential of performance for altering perceptions of space, time and causality, particularly through the materiality of the audience-artwork encounter. In addition, the conference will ask how victim identities are actively constructed, and ways in which enactments of suffering and victimhood might unsettle or incite unsustainable identifications of the reader/viewer. It also invites participants to address how personal histories and traumatic memory are performed in the medical encounter, and in public narratives surrounding medicine and psychiatry.

Contributions may include, but need not be limited to, the following themes:

  • The unspeakable/unrepresentable in theatre and performance art
  • Traumatic spaces and sites in performance and/or installation
  • The politics of spectatorship in performance and visual art, and ways in which injustices are registered (or fail to be registered)
  • Performing narratives of trauma and victimhood in popular culture
  • Speaking the unspeakable (for example the role of poetry readings, support groups etc.)
  • Traumatic narratives as self-performance
  • Trauma and comedy, satire and/or parody
  • Perspectives from victimhood and vulnerability studies
  • Issues surrounding trauma and/or vulnerability in practise-as-research

The conference will take place at UCL on 26th April 2018, and is supported by the UCL Institute of Advance Studies, Birkbeck, and the Wellcome Trust. It will also feature a curated creative panel and a practise-as-research contribution in collaboration with the Birkbeck Centre for Contemporary Theatre.

Travel bursaries are available for those giving papers.

Please send abstracts of 250 words (for 20 minute research papers), accompanied by a 100 word bio, to Leah Sidi (Birkbeck) and Natasha Silver (UCL) at performancetraumaconf@gmail.com by 31st January.

New AHHE Special Issue: Representing Trauma; Honouring Broken Narratives

Vol. 17, Issue 1, Feb 2018

The artwork helping healthcare professionals see beyond patients’ illnesses
Patients as People, an exhibition by artist Emma Barnard https://www.ahsw.org.uk/news.aspx?id=1662

 Special Medical Humanities Issue:

Representing Trauma; Honouring Broken Narratives

Editors: Deborah Bowman, Renata Kokanovic and Jan Parker

Editorial: Stories, narratives, scenarios in Medicine 
Jan Parker

This Medical Humanities Special Issue critiques and reflects on narrative practices around
medical, psychiatric and trauma care. This introductory article explores the affordances of
patient experience narratives and scenarios to illuminate lives interrupted by medical and
psychological criseswhile raising questions about the medical ethics, epistemological frameworks
and potential pathologising of diagnosing complex conditions. It discusses the problematics
and ethics of ‘re-presenting’ trauma in art, photography, film or music and the
potential for theatre to raise difficult issues in and beyond medical training.

Listening to what cannot be said: Broken narratives and the lived body 
Renata Kokanovic´ and Meredith Stone

The core of this special issue of Arts and Humanities in Higher Education emerged from the Broken Narratives and the Lived Body conference held in 2016. The ‘Broken Narrative’ essays included in this issue open up a critical space for understanding and theorising illness narratives that defy a conventional cognitive ordering of the self as a bounded spatial and temporal entity. Here, we discuss how narratives might be ‘broken’ by discourse, trauma, ‘ill’ lived bodies and experiences that exceed linguistic representation. We trouble distinctions between coherent and incoherent narratives, attending to what gaps, silences and ‘nonsenses’ can convey about embodied illness experiences. Ultimately, we suggest that ‘breaks’ are in fact a continuation of embodied narration. This is shown in the ‘Art and Trauma’ forum of essays, which reveal how narrative silences can ‘infect’ other embodied subjects and be transformed, achieving musical or visual representation that allow us to apprehend the ‘constitutive outside’ of narratives of illness or trauma.

Bodywork: Self-harm, trauma, and embodied expressions of pain
Kesherie Gurung
Weathering a violent storm together – Witnessing and co-constructing meaning in collaborative engagement with those experiencing psychosis-related challenges
Lizette Nolte
Honouring a life and narrative work: John’s story
Sara Ryan
‘I am tired from all of these feelings’: Narrating suffering in the film Sick
Senka Bozic-Vrbancic, Renata Kokanovic and Jelena Kupsjak
Mental illness within family context: Visual dialogues in Joshua Lutz’s photographic essay Hesitating beauty
Agnese Sile
Music as post-traumatic discourse: Nikolay Myaskovsky’s Sixth Symphony 
Patrick Zuk
Knowing the past affectively: Screen media and the evocation of
intergenerational trauma
Ana Dragojlovic
‘To give an outsider an idea of what it could be like’: A case study 
Michael Flavin and Bethany James
Improvising in the vulnerable encounter: Using improvised participatory theatre in change for healthcare practice
Henry Larsen, Preben Friis and Chris Heape
The seeing place: Talking theatre and medicine
Deborah Bowman and Joanna Bowman

SPECIAL ISSUE: Critique as a Signature Pedagogy in the Arts and Humanities

PM: I found a lot of common threads about critique, and feel that several of the contributions are fairly in line with each other—especially the essays that focused on creative writing, composition, art/design, dance, theater, music. Each of these essays spent some time unpacking the process and value of critique in the classroom, focusing to some extent on the hands-on aspect of critique. I also saw overlap in the structures of critique, such as the need for iteration, the value of reflection, expert/novice relationships, social dynamics and power structures, the need to use disciplinary language, formative vs. summative feedback, procedural steps of a critique, modeling how critique works, etc. Some of the other essays seem a little bit more focused on meta-level issues. Nancy, your essay with Jen and Ben’s on foreign languages are broader in my view, more about the big picture of signature pedagogies writ large. Others, Jill’s in particular, critiqued the process of critique and pointed out that it’s not always rosy and good. I also like Jen’s thoughts about growing as one who critiques towards a level of autonomy and self-sufficiency.

NC: Yes, a developmental activity, not a discrete classroom activity but part of a series that occurs over time. This reminds me of one of the common features of the arts and humanities mentioned at one of our ISSOTL Interest Group panels: the process of any learning activity is as important as product. It strikes me that critique—when facilitated well—is firmly grounded in some of what we know about the processes by which learning happens. In Knowing What Students KnowThe Science and Design of Educational AssessmentPellegrino et al. (2001) conclude that “assessments, especially those conducted in the context of classroom instruction, should focus on making students’ thinking visible to both their teachers and themselves” (4). In most situations, critique or peer review or workshop does precisely that work of making thinking visible—but a very specific moment of guided thinking. Again, Pellegrino et al. say that “students learn more when they understand (and even participate in developing) the criteria by which their work will be evaluated, and when they engage in peer and self-assessment during which they apply those criteria” (9). What’s made visible in critique is the practice in applying these criteria. This metacognitive work is powerful, something we know for certain about how learning best happens…

 

Tuning History Special Issue

 

 

 

http://journals.sagepub.com/toc/ahha/16/4

The Tuning educational project for history has its supporters and its detractors. This overview of the articles contained in this special issue of the journal reflects on some of the complexities of implementing such an ambitious global project and the local and national priorities that have made the process both stimulating and challenging for those involved. And it argues that while lists of competences constitute valuable reference points for discussion of the arts and humanities curriculum in an international context, they should be seen as the starting point for a more detailed and broad-ranging set of global conversations about how we (should) teach our subjects and why this matters for students in today’s world.

Table of Contents

Volume 16, Issue 4, October 2017

Special Issue: Tuning History

Guest Editor : Alan Booth Guest Editor : David Ludvigsson
Editorial

Tuning history

Tuning the discipline of history in the United States: Harmony (and dissonance) in teaching and learning

Tuning history in Latin America

Tuning history: The French experience

Using US Tuning to effect: The American Historical Association’s Tuning Project and the first year research paper

Tuning and History: A personal overview

The yin and yang of Tuning History

Thoughts on history, tuning and the scholarship of teaching and learning in the United States

Critical Creativity: a symposium for Timothy Mathews

Critical Creativity: a symposium for Timothy Mathews 

Friday 22nd Sept.

Why does engagement with art matter? As Timothy Mathews retires from his long career as Professor of Comparative Criticism in the French Department at UCL, this symposium celebrates the diversity of his approach to addressing this question in his teaching and research. Tim is known for his contributions to Comparative Literature, Translation Studies, a broadly creative approach to writing criticism, and, of course, French Studies.
Tim’s colleagues and collaborators from across these fields gather to present short papers and other interventions expressing their own view of Tim’s work and related topics and questions. Contributions range from the affective to the ethical to the theoretical, including their practical applications, and dialogue and discussion – always a feature of Tim’s work – is warmly encouraged.
Guests are welcome to attend. Please register via this page.

Programme:
10.00-10.20 Registration
10.20-10.45 Welcome
10.45-12.30 Panel 1: Comparative thinking
12.30-13.30 Lunch
13.30-15.00 Panel 2: The object as critical theory
15.00-15.30 Tea
15.30-17.00 Panel 3: Poetry and translation
17.00-17.30 ‘Slide-show’. An intervention by Jerome Game
17.30-19.00 Reception

Confirmed speakers:

  • Lucia Boldrini, Goldsmiths
  • Jenny Chamarette, QMUL
  • Martin Crowley, Cambridge
  • Jane Fenoulhet, UCL
  • Patrick ffrench, KCL
  • Clare Finburgh, Kent
  • Jerome Game, American University in Paris
  • Jane Gilbert, UCL
  • Ian James, Cambridge
  • Jo Malt, KCL
  • Sharon Morris, UCL

Northern Network for Medical Humanities Research Congress

Thursday 14th September 2017 Van Mildert College, Durham
Programme Day 1

Keynote address: Ericka Johnson and Kristin Zeiler (Linköping University, Sweden) “Embodiment, Materiality and Normativity in Medical Humanities”

Parallel 1 1a) Medical Posthumanities?: New Approaches to Illness, Disability, and Care 
Amelia DeFalco (University of Leeds) Imagining Posthuman Care

Beverley Clough (University of Leeds) New Materialisms and Posthumanisms: New Directions for Mental Capacity Law

Nick Jenkins (University of the West of Scotland) When Species Meet in Dementia: A critical posthumanist exploration of ‘animal assistance’ for people living with Alzheimer’s disease and associated disorders

1b) Spaces of Madness
Ute Oswald (University of Warwick) ‘The Pleasure is Intense’: Social Activities in British Asylums c. 1800-1890 “In exposing the impact of recreational activities on the nineteenth-century insane, this paper aims to prompt a discussion around the rehabilitative value of these activities, potentially staking a claim in identifying the forerunners of art, music and drama therapy.”

Natalie Mullen (University of Lancaster) ‘The Geography of License’: Asylum Architecture and Patient Agency in Lancaster’s County Asylum, 1840-1915

Cheryl McGeachan (University of Glasgow) Tracking Traces of the Art Extraordinary Collection– historical and cultural geographies of mental (ill)health and asylum spaces; “with particular interests in R.D. Laing, Scottish art therapy and ‘outsider’ art ” this paper feeds into debates concerning the need to expand the scope of archival research in the medical humanities beyond bounded walls and into the hearts, minds, bodies and landscapes of those bound up with histories in the making.”

1c) Tracing Concepts across the Life-Course 
Robbie Duschinsky and Sophie Reijman (University of Cambridge)  “We argue that the disorganised attachment classification has operated as a ‘buzzing boundary object’ – one that magnetises concern and acknowledgement among different groups through creating noise in which each can hear urgent messages, though at the price of reduced understanding and precision between contexts.”

Lesley Gallacher (Northumbria University) From milestones to wayfaring: Geographic metaphors and iconography of embodied growth and change in infancy and early childhood

Rina Knoeff (University of Groningen) Histories of Healthy Ageing: while “organisations increasingly accept “culture” as an important factor in the making of health policy, the “use” of history is problematic. In medicine history is often seen in a narrative of progress, whereby old advice and remedies are easily criticized as old-fashioned. In history the project touches upon the tricky question of whether we can learn from the past.”

Lisa Shaw (University of Liverpool) Cinema, memory and well-being: a pilot project for the over-65s in Petrópolis, Brazil

2a) Historicising bodies and mind
Noelle Dückmann Gallagher (University of Manchester) A Study of Noses: The Syphilitic Nose in Eighteenth-Century British Literature and Art “I examine the weird and wonderful cultural life of the deformed nose in eighteenth century British literature and art. I argue it came to assume a powerful metonymic significance, standing in for many of the broader social dangers that venereal disease could represent.”

Clark Lawlor (Northumbria University) ‘On Fashions in Physic’: Discourses of Fashionable Disease in the Romantic Period.”In a burgeoning medical market…Fashionable diseases were one crucial aspect of the construction of women as objects of conspicuous consumption and all the ideological contradictions that came with their role.”

Åsa Jansson (Durham University) From Self-Help to CBT: Regulating Emotion in a (Neo)Liberal World  “CBT derives from a model of the emotions as involuntary reactions, which we can learn to regulate through practice. This model has its roots in Victorian medicine, where a biological mind co-existed with ideas of moral responsibility and self-help. Disorders of affect were seen to develop over time, and could be prevented, paused, and reversed through habitual wilful effort to modify one’s conduct. By framing habit as a learned skill that restored the individual’s capacity for agency, Victorian physicians retained a moral quality to a model of the mind presented as scientific and objective. The idea of emotional regulation was a bound up with Victorian values of ‘self-help’ and ‘industriousness’, It is no coincidence, then, that the behavioural therapies and a biological, internal model of mental illness dominate in twenty-first-century neoliberal society built on visions of self-sufficiency and independence. However, locating psychiatric illness solely within the individual obscures its socioeconomic context. This ensures that questions about collective responsibility for psychological wellbeing are foreclosed, simultaneously marginalising alternative treatment models and arguments for radical economic and social reform. ”

2b) Concepts in Clinical Practice
Ylva Gustafsson (Åbo Akademi University, Finland) Reflections on the increasingly scientific research on empathy in medicine ” Today’s increase in writings on empathy in medical ethics gives the impression that there is a growing moral awareness of the importance of attending to the patient’s perspective. The aim of the paper is to investigate this impression [but] may in fact lead to a decreasing attention towards individual patients. Does the increasing pressure for cost efficiency in health care make quantifiable and generalizable research on empathy appealing? Is this one reason why cognitive conceptions of empathy have become popular in health care?”

Ian Sabroe (University of Sheffield) Uncertainty in clinical practice “the nature of uncertainty as experienced by clinicians is rarely examined…[nor] How uncertainty impacts … on the experience of the clinician, their practice, and their own health will also be explored.”

Jo Winning (Birkbeck, University of London) Putting theory into practice: embedding a practice-based medical humanities paradigm into the Clinical Assessment of Skills & Competencies examination, Royal College of Psychiatrists

2c) Environmental Factors & Affordances
Brian Ward (Northumbria University) In Search of the Sick South: Exploring Disease, Disability, Dying and Death in the US South “how the language of disease and contagion has critically informed official and popular southern opposition to various forms of popular music, notably jazz in the 1920s, rock and roll in the 1950s, and the British invasion of the 1960s. This language reveals much about the interaction of medical, racial, gender and class coordinates in southern history and culture, both real and imagined”

Arthur Rose (Durham University) Histories of a Killer Dust: 20th century genre fiction about asbestos

Benedict Hoff (University of Sheffield) Taking notice as therapeutic practice: urban mindfulness, curiosity and wellbeing

Parallel Sessions 3 3a) Shame & Multimorbidities
Luna Dolezal (University of Exeter) and Barry Lyons (Trinity College Dublin) Health-Related Shame: An Affective Determinant of Health? “emotional or affective states, in particular shame, can have a significant impact upon health, illness and health-related behaviours. We outline four possible processes: 1. Acute Shame Avoidance Behaviour; 2. Chronic Shame Health-Related Behaviours; 3. Stigma and Social Status Threat; and 4. Biological Mechanisms. We conclude with a proposal for a research agenda that aims to extend the state of knowledge of health-related shame”

Fredrik Nyman (Durham University) Taking sociality and locality as seriously as we do ‘bio’: Early thoughts on the biosocial aspects of support groups for people with chronic breathlessness in northern England

Sarah Atkinson (Durham University) Not Fitting In: Experiences of Living with Multiple Morbidity “accounts of those living with so-called ‘multimorbidity’ document…an integrated embodied experience rather than…a set of discrete conditions [and] breach and blur the boundaries and categories that are fundamental to diagnosis…they must continually rework their experiences into acceptable formats for presentation [to] Clinicians [whose] specific aim is to try to isolate particular diagnoses from others ”

3b) Lifewriting & Metaphor
Sue Vice (University of Sheffield) Dementia as Cultural Metaphor in Holocaust Narratives “Holocaust survivors are so closely associated with the importance of memory that the concept of a survivor who cannot remember, or whose suppressed memories resurface as if in present time, is troubling and fascinating. The representation of dementia prompts ontological questions about personhood and communication, while also demanding experimentation with narrative form.In Holocaust art, dementia… allows for the emergence of different temporalities, locations and languages in a single moment; raises questions about the relationship between trauma and memory; complicates second- and third-generation postmemory; and exaggerates the notion of an incommunicable or secret past. Dementia among survivors generates a specifically Holocaust-related ‘cultural metaphor’.”

Katrina Longhurst (University of Leeds) Collaborative Telling and Interactive Memory in Contemporary Mental Health Life Writing “Lauren Slater’s second memoir, Welcome to my Country (1996) is a compilation of tales, each centred on the relationship between Slater, in her role as clinical psychologist, and a patient. Slater argues that the text is a memoir on the basis that so much of her exploration of self emerges through the connections with another in the therapeutic encounter. She therefore uses her patients’ stories, and the narrative of her relationship with them, as vehicles by which to indirectly tell her own history of mental illness and abuse. By emphasising moments of reciprocity, identification, and interconnection Slater foregrounds relationships as spaces from which life writing emerges.

Mimi Huang (Northumbria University) Narrative modulation and meaning construction in the storytelling of women with breast cancer “First-hand accounts of breast cancer survivors’ experiences in going through the transitional periods provide valuable insights into the ways individuals perceive, conceptualize and negotiate life-changing events in their life journeys…With a focus on meaning construction, this paper proposes “narrative modulation” that functions to regulate, adjust and advance storylines and their associated themes…considers conceptual metaphors [and] the performative stance of storytelling.

3c) Provocations Chair: Angela Woods
Natalie Riley (Durham University) Cognition and Theoria “I contest Colebrook’s claim that work between the cognitive sciences and the humanities comprises a simple appeal to legitimating biological truths…highlighting the importance of a broader dialogue with other branches of critical theory ”
Diana Beljaars (Cardiff University) A vitalist ethics and spatial imagination of compulsivity? “explores the idea of imagining compulsivity as both producer and product of an emergent relationship between the human body and its surroundings [and] hopes to incite new ways of understanding and alleviating the suffering purported by compulsivity”
Louise Mackenzie (Northumbria University) Art Practice in the Laboratory: Imposition as Methodology “ I use synthetic biology techniques to understand more deeply the implications of biotechnology as a form of art practice – a ‘thinking through making’ (Ingold, 2013).The work sits within the Cultural Negotiation of Science (CNoS) research group based at Northumbria University. The group takes a performative approach to the production of knowledge that actively challenges the use of art as an instrumental or illustrative device to interpret science”
Caitlin Stobie (University of Leeds) White Elephants in the Room, or, New Materialism and Abortion Narratives I”argue that such reproductive issues should be addressed by interdisciplinary and intersectional research. The abortion debate revolves around issues of personhood – when a foetus [has] gained personal agency. Rhetoric draws attention away from the physical capabilities of the zygote in the present, and focuses instead on its future potential as an autonomous human being. Simultaneously, the abortion debate highlights the agency – or lack thereof – of the person who is pregnant…This provocation does not adhere to the typical conflation of humanity with personhood [but] suggests that we should reconceive of the very notion of agency. To best represent this, and the transformative potential of a truly feminist new materialism, I refer to a range of literary abortions”
Lena Wånggren (University of Edinburgh) Working conditions, health, and illness in the contemporary university