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09:30 – 10:30 PLENARY LECTURE

 What Archie Cochrane’s Case Narrative of 1943 Teaches

 Brian Hurtwitz

11:00 – 12:30 Parallel Session A

Health concepts and services

  1. Experiences of Ageing in Australia: Remote, rural and regional access to health services.Ryan, Kath ; Wild, Kayli; Team, Victoria; Tudball, Jacqueline;Smith, Lorraine
  2. “It’s very difficult to understand how patient narratives can contribute to improve health services” – a review of the evidence to counter a common reviewer concern. Biller-Andorno, Nikola; Streeck, Nina; Glässel, Andrea; Drewniak, Daniel
  3. Between the facts and the myths: Managing patient’s chronic pain narratives. Ahlsen, Birgitte; Nicholls, David
  4. Drawing on narrative accounts of dementia in Dutch dementia care education. Lamerichs, Joyce; Manna, Alma; Van der Linden, Katja
  5. Development of Educational Program Using Patients’ Narratives in DIPEx-Japan as a Trigger Film. Morita, Natsumi; Iba, Noriko; Hirokuni , Beppu; Yuko, Hirono; Rumiko, Akimoto; Chikako, Nakamura; Keiko, Goto; Emiko, Wada; Yoko, Setoyama; Akiko, Aoki; Tomiko, Takeuchi; Akiko, Sawada; Sato, Rika Sakuma; Semba, Miyuki
  6. Life stories as tools to change public health care systems: Examples and reflections from studies among Norwegian users of complementary and alternative medicine. Salamonsen, Anita

11:00 – 12:30 Parallel Session B

Health narratives and Subjectivity

1. “Rushing to a new, unwanted me”: multiple medicines breaking and remaking personal narratives. Tudball, Jacqueline; Ryan, Kath; Smith, Lorraine; Williamson, Margaret

2. Negative effects of social support for patients with inflammatory bowel diseasePalant, Alexander; Wolfgang, Himmel

3. Narrating the phantom limbHeavey, Emily

4. “I will claim that I am a very good success story”: gender and men’s narration of long- term experiences of WLSGroven, Karen Synne; Ahlsen, Birgitte; Robertson, Steven

5. “Its not your baby, you know the baby belongs to the hospital”; parent narratives of neonatal surgery and recoveryHinton, Lisa; Knight, Marian; Locock, Louise

6. “Halfway towards recovery”: rehabilitating the relational self in narratives of postnatal depressionStone, Meredith; Kokanovic, Renata

11:00 – 12:30 Parallel Session C

What can research into patient experiences teach us about good communication in health care?

1. How doctors speak in patients‘ illness narratives. Lucius-Hoene , Gabriele; Haug, Stephanie

2. ‘I had bad headaches and I was getting tired of telling this doctor’: Experiences of DiabeticsStubbe, Maria

3. Finding the treatment that is right for meHolmberg, Christine; Schultze, Martin; Müller-Nordhorn, Jacqueline

4. Learning from other people’s experiencesRyan, Kath

5. Challenges in patient professional communication regarding treatment preferencesOrmel, Ilja; Law, Susan

6. Learning to listen: Use of an illness narrative interview protocol to promote patient-centered care. Navarro de Souza, Alicia

14:00 – 15:00 PLENARY LECTURE

The Remoralization of Illness

Arthur Frank

15:00 – 16:00 Parallel Session D

(Bio-)Ethics

1. Narratives of children participating in clinical trials: reasons to change informed consent procedures? Luchtenberg, Malou; Maeckelberghe, Els; Locock , Louise; Powell, Lesley; Verhagen, Eduard

2. Women´s experiences with regular breast cancer screening in NorwayGjøstein, Dagrun Kyte

3. Narrative Ethics in Medical Catastrophes: A Case Study from Hurricane Katrina. Hudson Jones, Anne

4. All’s well that ends well? Stories of Death and Dying within Narrative. Streeck, Nina

15:00 – 16:00 Parallel Session E

Narrativas de Salud y Subjetividad (A)

1. Efectos de la reflexión comprensiva y la construcción de sentido mediante el relato de vida en un espacio de interrelación basado en la palabra y la escuchaBonafont Castillo, Anna

2. Para notar melhor a vida: o encontro entre a narrativa e os processos de cuidado humanizado em saude. Orofino, Maria Marta

3. Medicina y narrativas. Diferencias en el discurso de médicos y pacientes sobre el sufrimiento y la enfermedad: Análisis de entrevistas en Atención PrimariaCerame del Campo , Alvaro

4. Niveles deseados de implicación en su proceso de enfermedad y relación con os profesionales sanitarios: análisis secundario de las narrativas de pacientes con diabetes tipo 2 (proyecto DIPEx España). Duque, Victor; Mahtani, Vinita; Sanz, Emilio

15:00 – 16:00 Parallel Session F

Social Media and the use of Internet

1. Connecting the own illness story when reading about illness experiences of others on a website. – An evaluation study using the Think Aloud MethodBreuning, Martina; Bengel, Jürgen; Schäfer-Fauth, Lisa

2. Towards Reducing Stigma: New Media Mental Health Narratives. Birch, Michael

3. Social Media and Health Narratives: Representing the ‘Health Self’. Kent, Rachael

4. Measuring the impact of publicly available narratives on patients’ engagement in health care. Holmberg, Christine; Keller, Bettina; Rieckmann, Nina; Müller-Nordhorn, Jacqueline

16:00 – 17:00 Parallel Session G

Narrative and History: a case report accounting for The Lancet’s slow acceptance of germ theory.

Richardson, Ruth

16:00 – 17:00 Parallel Session H

(Bio-) Ética

1. El potencial de la bioética narrativa: de la peripecia a la sabiduríaDomingo Moratalla, Tomás; Feito Grande, Lydia

2. Narrativas de médicos colombianos en contexto de guerra: Principios y acciones que orientan la toma de decisión en situaciones dilemáticas. Urrego Mendoza, Diana Zulima

3. Teatro-Foro: una metodología innovadora para aprender ética. Altisent, Rogelio; Galbe, José; Giménez, Rocio; Berdié, Beatriz; Seves, Berta; García- Machín, Jesús; Lozano, Teresa; Pérez de Vallejo, Chusa

4. Estudio cualitativo sobre la percepción y preferencias de los pacientes que acuden a un centro de salud mediante una herramienta teatral. Blasco Casorran, Marta; Clares Puncel, María Teresa; Ferrer Sorolla, Daniel; Pueyo Gascon, Diego; Altisent Trota , Rogelio

16:00 – 17:00 Parallel Session I

Change and obstruction in the web of on-line health information (The Navigating Knowledge Landscapes network)

1. The on-line web as an arena for individual strong voices. On personal narratives, addiction and resistance. Svalastog, Anna Lydia

2. Narratives as a knowledge-context combination in the knowledge landscapes. Gajović, Srećko;Svalastog, Anna Lydia

3. Patient autonomy expressed in self-biographical health narratives. Ringstad, Øystein

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