09:30 – 10:30 PLENARY LECTURE
What Archie Cochrane’s Case Narrative of 1943 Teaches
Brian Hurtwitz
11:00 – 12:30 Parallel Session A
Health concepts and services
- Experiences of Ageing in Australia: Remote, rural and regional access to health services.Ryan, Kath ; Wild, Kayli; Team, Victoria; Tudball, Jacqueline;Smith, Lorraine
- “It’s very difficult to understand how patient narratives can contribute to improve health services” – a review of the evidence to counter a common reviewer concern. Biller-Andorno, Nikola; Streeck, Nina; Glässel, Andrea; Drewniak, Daniel
- Between the facts and the myths: Managing patient’s chronic pain narratives. Ahlsen, Birgitte; Nicholls, David
- Drawing on narrative accounts of dementia in Dutch dementia care education. Lamerichs, Joyce; Manna, Alma; Van der Linden, Katja
- Development of Educational Program Using Patients’ Narratives in DIPEx-Japan as a Trigger Film. Morita, Natsumi; Iba, Noriko; Hirokuni , Beppu; Yuko, Hirono; Rumiko, Akimoto; Chikako, Nakamura; Keiko, Goto; Emiko, Wada; Yoko, Setoyama; Akiko, Aoki; Tomiko, Takeuchi; Akiko, Sawada; Sato, Rika Sakuma; Semba, Miyuki
- Life stories as tools to change public health care systems: Examples and reflections from studies among Norwegian users of complementary and alternative medicine. Salamonsen, Anita
11:00 – 12:30 Parallel Session B
Health narratives and Subjectivity
1. “Rushing to a new, unwanted me”: multiple medicines breaking and remaking personal narratives. Tudball, Jacqueline; Ryan, Kath; Smith, Lorraine; Williamson, Margaret
2. Negative effects of social support for patients with inflammatory bowel disease. Palant, Alexander; Wolfgang, Himmel
3. Narrating the phantom limb. Heavey, Emily
4. “I will claim that I am a very good success story”: gender and men’s narration of long- term experiences of WLS. Groven, Karen Synne; Ahlsen, Birgitte; Robertson, Steven
5. “Its not your baby, you know the baby belongs to the hospital”; parent narratives of neonatal surgery and recovery. Hinton, Lisa; Knight, Marian; Locock, Louise
6. “Halfway towards recovery”: rehabilitating the relational self in narratives of postnatal depression. Stone, Meredith; Kokanovic, Renata
11:00 – 12:30 Parallel Session C
What can research into patient experiences teach us about good communication in health care?
1. How doctors speak in patients‘ illness narratives. Lucius-Hoene , Gabriele; Haug, Stephanie
2. ‘I had bad headaches and I was getting tired of telling this doctor’: Experiences of Diabetics. Stubbe, Maria
3. Finding the treatment that is right for me. Holmberg, Christine; Schultze, Martin; Müller-Nordhorn, Jacqueline
4. Learning from other people’s experiences. Ryan, Kath
5. Challenges in patient professional communication regarding treatment preferences. Ormel, Ilja; Law, Susan
6. Learning to listen: Use of an illness narrative interview protocol to promote patient-centered care. Navarro de Souza, Alicia
14:00 – 15:00 PLENARY LECTURE
The Remoralization of Illness
Arthur Frank
15:00 – 16:00 Parallel Session D
(Bio-)Ethics
1. Narratives of children participating in clinical trials: reasons to change informed consent procedures? Luchtenberg, Malou; Maeckelberghe, Els; Locock , Louise; Powell, Lesley; Verhagen, Eduard
2. Women´s experiences with regular breast cancer screening in Norway. Gjøstein, Dagrun Kyte
3. Narrative Ethics in Medical Catastrophes: A Case Study from Hurricane Katrina. Hudson Jones, Anne
4. All’s well that ends well? Stories of Death and Dying within Narrative. Streeck, Nina
15:00 – 16:00 Parallel Session E
Narrativas de Salud y Subjetividad (A)
1. Efectos de la reflexión comprensiva y la construcción de sentido mediante el relato de vida en un espacio de interrelación basado en la palabra y la escucha. Bonafont Castillo, Anna
2. Para notar melhor a vida: o encontro entre a narrativa e os processos de cuidado humanizado em saude. Orofino, Maria Marta
3. Medicina y narrativas. Diferencias en el discurso de médicos y pacientes sobre el sufrimiento y la enfermedad: Análisis de entrevistas en Atención Primaria. Cerame del Campo , Alvaro
4. Niveles deseados de implicación en su proceso de enfermedad y relación con os profesionales sanitarios: análisis secundario de las narrativas de pacientes con diabetes tipo 2 (proyecto DIPEx España). Duque, Victor; Mahtani, Vinita; Sanz, Emilio
15:00 – 16:00 Parallel Session F
Social Media and the use of Internet
1. Connecting the own illness story when reading about illness experiences of others on a website. – An evaluation study using the Think Aloud Method. Breuning, Martina; Bengel, Jürgen; Schäfer-Fauth, Lisa
2. Towards Reducing Stigma: New Media Mental Health Narratives. Birch, Michael
3. Social Media and Health Narratives: Representing the ‘Health Self’. Kent, Rachael
4. Measuring the impact of publicly available narratives on patients’ engagement in health care. Holmberg, Christine; Keller, Bettina; Rieckmann, Nina; Müller-Nordhorn, Jacqueline
16:00 – 17:00 Parallel Session G
Narrative and History: a case report accounting for The Lancet’s slow acceptance of germ theory.
Richardson, Ruth
16:00 – 17:00 Parallel Session H
(Bio-) Ética
1. El potencial de la bioética narrativa: de la peripecia a la sabiduría. Domingo Moratalla, Tomás; Feito Grande, Lydia
2. Narrativas de médicos colombianos en contexto de guerra: Principios y acciones que orientan la toma de decisión en situaciones dilemáticas. Urrego Mendoza, Diana Zulima
3. Teatro-Foro: una metodología innovadora para aprender ética. Altisent, Rogelio; Galbe, José; Giménez, Rocio; Berdié, Beatriz; Seves, Berta; García- Machín, Jesús; Lozano, Teresa; Pérez de Vallejo, Chusa
4. Estudio cualitativo sobre la percepción y preferencias de los pacientes que acuden a un centro de salud mediante una herramienta teatral. Blasco Casorran, Marta; Clares Puncel, María Teresa; Ferrer Sorolla, Daniel; Pueyo Gascon, Diego; Altisent Trota , Rogelio
16:00 – 17:00 Parallel Session I
Change and obstruction in the web of on-line health information (The Navigating Knowledge Landscapes network)
1. The on-line web as an arena for individual strong voices. On personal narratives, addiction and resistance. Svalastog, Anna Lydia
2. Narratives as a knowledge-context combination in the knowledge landscapes. Gajović, Srećko;Svalastog, Anna Lydia
3. Patient autonomy expressed in self-biographical health narratives. Ringstad, Øystein